Founded in 2013 by Billy “Joey” Rowe, Chiari Fund is dedicated to helping those in need who have become afflicted by Arnold Chiari Malformation (ACM), Tethered Cord Syndrome (TCS), Syringomyelia (SM), Ehlers Danlos Syndrome (EDS), Craniocervical Instability (CCI), and other related disorders. The vision of the organization came from his own experiences with having Chiari, Craniocervical Instability, and Tethered Cord with him seeing first-hand how many people need help in obtaining the appropriate care they deserve. Money should never be an obstacle for anyone to receive the best care and see the best doctor to take care of their condition. Joey saw this as a void in the community and thereby Chiari Fund was born.

All these programs come at a huge cost therefore fundraising and donations are an integral part of what Chiari Fund does. With the necessary needs to help the Chiari community, it is our hope that all of those that need doctor care can receive it. In turn, the Chiari community is better off as a whole. Although Chiari Fund only puts a band aid on a huge problem, it is a start.

Important Fact: All board members and anyone else that is associated with Chiari Fund have never been compensated and will receive NO compensation going forward. Our goal is that 90% + is given directly to those in need.