GettingUp.Org

Mission Statement 

To support finding a CURE & TREATMENT for NEUROMUSCULAR DISEASES, specifically Inclusion Body Myositis. 

Inclusion Body Myositis is a Rare, Isolating Muscle Disease

Inclusion body myositis, sometimes called sporadic inclusion body myositis (sIBM), is even less well-known than many other rare diseases. It is one of several types of myositis, a group of diseases that cause muscle inflammation, weakness, and loss of mobility. There is no medical treatment, and funding for inclusion body myositis research is very limited. Please help, your gift will be greatly appreciated.